ASD · Autism · Autism Spectrum · Newly Diagnosed · Parents

New to the World of Autism? Part Two

Question Two: Where do I begin?

 Your child recently has been given the diagnosis, and you have been able to at least grab hold of the situation, but you are unsure of really where to begin.

 If you aren’t sure, grab a cup of coffee, tea or what ever your pleasure.  Sometimes wine can help but make sure you wait for that in the evenings. 🙂 Begin by sitting down at your computer and just Google away.  Google terms, “Autism” and (your state).  See what pops up on the screen. Usually that can get you to a good starting place.  Don’t Google too much or you might suffer from information overload.

Do your research:  I highly recommend this.  Depending on how old your child is it can be frustrating or satisfying. From my experience, at the time my son was diagnosed I didn’t have the resources to do much of anything.

I spoke with my child’s pediatrician and he was able to give me a referral to my Area Regional Center and that’s what got the ball rolling. With this referral I knew this meant he might be qualified for services. Fair warning though, the process can be quite daunting.  There are a few steps you have will go through to be qualified;  Required written documentation, assessments, interview and orientation.

Things I discovered through this process:

1. Paper Pusher Extraordinaire: 

You will accumulate an incredible amount of paperwork.  If you are organized I envy you, because I am not in the least. The skill of organization will come in handy through your journey.

 2. Be Patient:

 I can’t emphasize this enough.  During the entire process you will be doing a lot of “hurry up and wait.” Don’t be discouraged by this and throw in the towel.  The outcome is well worth the wait 100 times over. You will acquire a vast amount of patience over the years.

 3. Ask a lot of Questions:

Before my child was diagnosed, I was not one for asking questions.  Now seven years later, I question every single issue that arises.  If you are not sure, always ask. It is your child and you have every right as a parent. Don’t let anyone tell you differently.

Stay tuned for the third question in part three: What is Autism Exactly?