ASD · Autism · Autism Spectrum · Newly Diagnosed · Parents

New to the World of Autism? Part Two

Question Two: Where do I begin?

 Your child recently has been given the diagnosis, and you have been able to at least grab hold of the situation, but you are unsure of really where to begin.

 If you aren’t sure, grab a cup of coffee, tea or what ever your pleasure.  Sometimes wine can help but make sure you wait for that in the evenings. 🙂 Begin by sitting down at your computer and just Google away.  Google terms, “Autism” and (your state).  See what pops up on the screen. Usually that can get you to a good starting place.  Don’t Google too much or you might suffer from information overload.

Do your research:  I highly recommend this.  Depending on how old your child is it can be frustrating or satisfying. From my experience, at the time my son was diagnosed I didn’t have the resources to do much of anything.

I spoke with my child’s pediatrician and he was able to give me a referral to my Area Regional Center and that’s what got the ball rolling. With this referral I knew this meant he might be qualified for services. Fair warning though, the process can be quite daunting.  There are a few steps you have will go through to be qualified;  Required written documentation, assessments, interview and orientation.

Things I discovered through this process:

1. Paper Pusher Extraordinaire: 

You will accumulate an incredible amount of paperwork.  If you are organized I envy you, because I am not in the least. The skill of organization will come in handy through your journey.

 2. Be Patient:

 I can’t emphasize this enough.  During the entire process you will be doing a lot of “hurry up and wait.” Don’t be discouraged by this and throw in the towel.  The outcome is well worth the wait 100 times over. You will acquire a vast amount of patience over the years.

 3. Ask a lot of Questions:

Before my child was diagnosed, I was not one for asking questions.  Now seven years later, I question every single issue that arises.  If you are not sure, always ask. It is your child and you have every right as a parent.  http://www.wrightslaw.com/ Don’t let anyone tell you differently.

Stay tuned for the third question in part three: What is Autism Exactly?

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ASD · Autism · Tips

New to the World of Autism? Part One

You have recently been told that your child has been diagnosed with Autism. Most of the time our reactions are disbelief, shock, and sometimes depression combined with being isolated from the outside world.  I won’t put it lightly…receiving the news stinks and it weighs heavy on your head night and day.  Who do you talk to now? What do you do? First of all ask yourself this question:

Question One: How Am I Doing?

 Are you down and just really depressed? Follow these tips:

 Self Care:

Take the time for yourself, listen to music, meditate, try to sleep when you can, hide in the bathroom, take up a new hobby, look at your life and just laugh at it. You will survive. 🙂

 Social Media & Facebook:

There are hundreds of personal Facebook Autism support pages out there.  I highly encourage you to head on over, check them out and like their pages. Try and develop a connection with a community that “Gets it.” Just knowing there are families, individuals, and services out there will give you a sense of well-being and help you cope. 

When my son was diagnosed over 7 years ago there wasn’t the presence of Autism as it is today. It much easier to connect these days. 

 Make the connection with Me>>

Facebook: You can like and follow my pages for the latest on my website. 
Twitter: follow me on twitter
Stim Soup:  A website just for you.

 Support groups:

There are wonderful meet ups just to chat, have coffee and a time or too have guest speakers. These groups can be based on the age of your children. If you cannot find a connection in your part of town where you live, my suggestion is to start one! 

 Social Groups:

These aren’t as numerous, these groups may have social outings with activities for children. Meet up groups for example. http://www.meetup.com/

But personally I am not much of social person, but once in a while I find it comforting to know that there is someone out there (parent or otherwise) who totally “gets it!”  That is such a nice feeling. 

 Stayed tuned for the next two parts of this article.

Part 2: Where Do I Begin?

Part 3: What is Autism Exactly?

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